Archive for January, 2010

Guest Post: A Patient POV

Friday, January 29th, 2010

MoleSafe customer and blogger, E.B. Moss, as  our guest blogger, on her experience at MoleSafe in Millburn.

As a “woman of a certain age,” I am used to getting the recommended regular medical tests and checks. But I didn’t know there was more to a skin exam than the occasional inspection done by my dermatologist, when I remembered to even book those check-ups. I was proud of myself for being a little more vigilant than many I know – who had never even done a skin exam let alone been checked between the toes, for example! I felt ahead of the curve by comparison.

Then the experience of two different friends gave me a head’s up about ways to get a better head-to-toe scan. My friend Leslie, who has a lot of “beauty marks,” lives near the Millburn location of MoleSafe and had gotten full body scans and “molemapping” for herself and even her children. (I found out that skin cancers are on the rise among kids – especially teenage girls who have been allowed to use tanning salons.)
(I cringe when I think of us using those sunlamps as kids.)

I was thinking about checking out the place and then I bumped into my friend Carol, who had just gotten back from a follow up exam since her bout with melanoma a few years ago. Her cancer had actually been spotted by a woman standing behind her on a ticket line. Carol had had a sleeveless shirt on, and a woman tapped her on the shoulder and said, “pardon me for intruding, but has anyone ever checked out the mole on the back of your arm?…” Carol was vaguely aware of it, but it wasn’t in a place she could easily see. She decided to see the doctor…and a surgery with 16 stitches inside and 16 stitches outside basically saved her life the next week.

That was enough coincidence to send me to MoleSafe to see for myself…and have someone see ME better than I could myself! I spoke to Dr. Richard Bezozo, who invited me in so I could help share the experience with my readers. Bascially, MoleSafe is a three-prong protocol for screening: “Total Body Photography, total digital dermoscopy and digital sequential monitoring.” Apparently, that’s the gold standard for screenings that most dermatologists in the rest of the world recommend. We’re behind the curve in the good old US of A for being progressive in prevention. And it’s not like this is an invasive protocol.

Anyway, here’s what happens:

First, the place is clean, nice, and comfortable (and right near the train from NY.) You get down to your skivvies (you can keep a paper gown on, but I figured mole mapping is once a year and very important, so might as well go for the semi-full monty.) The exam room has a mat that looks like something from an old-fashioned dance lesson (or these days like a Dance Mat from Wii!)

My very reassuring nurse/“moleographer” had me take a stance with my feet in the position indicated on the mat with hands akimbo (I think that means hands on hip? but I always wanted to be able to use that word in a blog). dance_stepsShe took a set of images that way, then a set of images on the otherside, feet in the opposite position.

Then we sat down at her desk while she uploaded the super high res images, then coordinated the pictures to points on a computer image of a body. It was like creating a constellation on paper. I could immediately understand how the consistency of taking the same position on the mat year after year is a lot more efficient than random poses and “eyeballing” things. My molegrapher then carefully did a visual exam of moles that caught her eye and captured those with a dermatoscope – it’s a super magnifying camera with a special light that really shows details of specific moles. She uploaded those images, also correlated on the computer to the ones she’d marked on the figure.
It was fascinating to see super enlargements of my skin on the computer. You might find out that there are some that are “interesting” – and might be reassured about others…but all of them are sent electronically (yes, safe and encrypted) to a sort of radiologist/dermatologist who reviews the dermatascope images professionally.

You get a lovely CD of your body mole images to take home and give to your dermatologist. Then, a week or two later you have a report from the specialist sent to you.

The thing is, MoleSafe doesn’t do any surgeries or removals, so dermatologists are still involved in the whole process. I guess It’s like sending a person for an MRI and having then having them come back to the doctor to get treated for the broken leg or tumor or whatever. We need to be our own patient advocates and seek out MoleSafe on our own…or bring it to the attention of our doctors. You can go get one without a referral, and some insurance will cover it when you submit the receipt for reimbursement. Some won’t. But it’s an investment in your life compared to the approach most dermatologists have been using for the past 50 years.

So, I recommend you get on board. Or, get on mat, I guess.

PS: The good news is that I am a-okay, but have a much better sense of what to look for, where to look for it, and why.

PSS: MoleSafe is opening at NYU on 2/3. That should be the eye-opener a lot of people need about the value and legitimacy of this kind of protocol.

  • Share/Bookmark

Melanoma Making News

Tuesday, January 26th, 2010

I thought I’d share a compilation this week of some interesting stories that have made the melanoma news alerts recently.  Some very exciting developments…for people AND pets!

1. Clamping Down on Tanning Beds:

If you’ve been reading these posts, you know I’ve been mentioning the effort to increase restrictions on tanning beds.  This has been championed most strongly in Great Britain and “down under,” but the US is catching up.  The FDA will be reviewing guidelines in March.   Here’s a great summary, including the expected response from the Indoor Tanning Association:

Pooches to Pouches

2. Be a best friend to your dog. Keep your ears perked for release of a new therapeutic DNA vaccine designed to aid in extending survival of dogs with oral melanoma.  The USDA just licensed Merial Limited for this canine melanoma vaccine.

Since melanoma is one of the most common forms of cancers in dogs, here’s a factual overview of types and symptoms.

3. A clue to a cure from Kangaroos? Aussie scientists are researching how Kangaroos auto-repair their damaged DNA for clues to how we might adapt a therapy down the road for humans.

4. Driving Down Under. A little further south of Australia, the kiwis are getting the news out about prevention while driving.  We often take our cues from the southern hemisphere on skin cancer prevention as they have some of the highest rates of the disease in the world, and thus are some of the most proactive in prevention tactics.  So I wanted to share this latest suggestion of theirs: a reminder to motorists that they need protection even while inside vehicles, as windows only block 37% of harmful rays.

There are a lot of fashionable driving gloves these days, so why not make a statement!?

  • Share/Bookmark

Vacation Inspiration

Friday, January 15th, 2010

For fire safety, we should all change the batteries in our smoke alarms at least once a year. Some fire safety organizations promote “change your clocks, change your batteries,” as a way to remember when.  FEMA estimates that “when working smoke alarms are present, the chance of dying from the fire is cut in half.”

What does this have to do with Melanoma?

I’d like to see us adopt calendar-based reminders for skin exams, too, which are also lifesaving activities. Skin cancer prevention tends to be top-of-mind during the summer months when outdoor activity is ramped up and retailers are pushing umbrellas and sunscreen. So, that’s one seasonal reminder: check your skin when you return from a summer vacation.

Here’s another seasonal, or activity-based, reminder: check your skin after a return from your winter vacation, too. Those getaways to sunny ski slopes are equally as dangerous as summer sun…sometimes more so.   Skin-Care News posted a decent article on some smart cold-weather protection and pampering ideas for skin. (This isn’t an endorsement of products, but that muscle soak sounds pretty good to me!)

Just remember that sun safety and skin-cancer prevention is essential year round – especially on the mountains – so add your ABCD’s and E’s to the calendar after your January or February vacation, for example!

Speaking of which, let’s pay tribute to the life-saving contributions of NYU and the 25th Anniversary of their development of that ABCDE acronym for skin-exam how-tos.

ADD's Downloadable Mole Map Guide

ADD's Downloadable Mole Map Guide

It was 1985 when the erudite Dr Alfred Kopf and NYU fellows Robert Friedman, MD, and Darrell Rigel, MD, created the original ABCD guide, “evolving” it about five years ago with Dr. David Polsky for the added “E”.

Here’s an idea to really make the most of your regular exam: Make one of those vacations a trip to the Big Apple, and book your annual MoleSafe exam at NYU! Per my recent post, we are thrilled to have that esteemed and forward-thinking institution as a MoleSafe partner.  And when you’re here in New York City, there are some great slopes – and great beaches, too — right nearby.

Just remember to pack the sunscreen either way.

  • Share/Bookmark

Melanoma Shows no Favorites

Thursday, January 7th, 2010

The wealthy or the poor. African American or Caucasian.  Melanoma is non-discriminating.  Two news stories this past week showed just how this assassin has no loyalties.

FDR and Melanoma

In a new book, “F.D.R.’s Deadly Secret,” by neurologist Dr. Steven Lomazow, and journalist Eric Fettmann, Franklin D. Roosevelt’s death is hypothesized to have been from melanoma.  The authors point out various symptoms and medical/political cover-ups, most specifically a disappearing mole in photos over the years.

The book has served to create additional speculation even if it still has not unshrouded the mystery to the satisfaction of many historians.  But it has also served to do what we try to do here at Melanoma Updates as well:  increase awareness of the deadly trajectory of late or undiagnosed melanomas.

Equal Opportunity Disease

Other melanoma news this week that is more substantiated was about the disparity in skin cancer diagnoses and deaths among Hispanics and African Americans

While the actual incidents of skin cancers and melanomas are lower, African Americans are more than twice as likely as Caucasians to have a melanoma that had spread “regionally or to distant parts of their bodies” at the time of diagnosis.  Based on a study of 41,000 cases of melanoma diagnosed in Florida between 1990 and 2004, 12% of white non-Hispanic patients had advanced cancer by the time they were given a diagnosis, 18 % of Hispanic patients and 26% of black patients were at this later stage, when the cancer had already spread.

Granted, the study was based in sun-drenched Florida, but the study’s authors feel a contributing factor may be that Hispanics and blacks might put off seeing a doctor about melanoma lesions because they’re under the impression it’s a whites-only disease. As written in NewsOK:

They’re mostly right, but not completely: … According to the National Cancer Institute’s online database, 28.9 of every 100,000 white men are diagnosed with melanoma, and 18.7 of every 100,000 for white women. For Hispanic men and women, the rates are 4.7 and 4.6; for blacks, it’s 1.1 and 1. Overall, the median diagnosis age is 59.

But the survival rate for whites has gone from 68 percent in the early 1970s to 92 percent in recent years, the study says. “Such advances, however, have not occurred in other racial and ethnic groups in the United States.

And, as summed up in The New York Times version of the story:

“The simple message is that even though blacks and Hispanics are at lower risk, they can still get melanoma, but there seems to be a lack of awareness, so they’re diagnosed at a later stage,” said Dr. Robert S. Kirsner, the paper’s senior author and vice chairman of dermatology at the Sylvester Comprehensive Cancer Center at the University of Miami Miller School of Medicine.

The takeaway?  Everyone still has to be vigilant.

  • Share/Bookmark